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Prostate Cancer Patient Resources

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Newly Diagnosed! Click here for biopsy related information (Gleason Score and Clinical Staging) and help with understanding your options.

Resources included in this section are intended to insure that prostate cancer patients in North Carolina are well-informed. Our Cancer Center and Clinical Trials pages highlight major medical institutions in North Carolina that collaborate to provide leading edge research and the best possible care for those affected by this disease. Visit support groups accessible to all of our citizens where you will find knowledgeable survivors (and sometimes spouses) available for prostate cancer consultation.

Recommeded Reading:

• Cancer Management: a Multidisciplinary Approach by Judd W. Moul, MD, FACS (159KB - PDF)
• Smart Medecine for a Healthy Prostate by Dr. Mark McClure (Diplomate of the American Board of Urology and American Board of Holisitic Medicine)
• Resource Kit For Making Prostate Cancer Decisions (costs $18.95 from UsToo! International)

Additional Patient and Patient Advocate Recommended Resources:

• Newsletters and Mailing Lists
• Educational Conference Calls
• Patient HotLines
• Online Support Groups
• Websites: Basic Information
• Websites: Comprehensive Resource
• Websites: Difficult Cases
• Definitions & Glossaries
• Special Populations

Newsletters and Mailing Lists:
Association of Cancer Online Resource (ACOR)'s PROSTATE list, the National Prostate Cancer Coalition's Aware newsletter, The Prostate Cancer Research Institute (PCRI)'s Insights Newlsetter, Virgil Simons' ProstateNet In the Know newsletter, Prostate Cancer Research & Education Foundation's PC-REF Reporter, Patient Advocates for Advanced Cancer Treatments (PAACT) Prostate Cancer Communication, Prostate Pointers topic specific mailing lists, PSA-Rising, UsToo! International's Hot Sheets, Dr. Charles "Snuffy" Myer's Prostate Forum - the PCCNC highly recommends Dr. Myer's newsletter as a consistently valuable resource for prostate cancer patients and advocates.

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Educational Conference Calls:

• Every Tuesday 6PM to 9PM EST. Prostate Cancer Research and Education Foundation (PCREF) hosts "Ask Dr. Barken" - call 877-727-3301 to listen in and/or ask questions.
• CancerCare Connect. Please note, you must pre-register for CancerCare calls at least one week in advance of the Workshop. For more information, call CancerCare at 1-800-813-HOPE (4673) or click here to view upcoming workshops and pre-register.

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Patient HotLines:

• The ProstateNet: (888)4ProsNet / 888-477-6763
• UsToo! Patient Hotline: (800)80ustoo / 800-808-7866
• National Cancer Institute (NCI): 1-800-4-CANCER / 1-800-422-6237)
• American Cancer Society (ACS): 800-ACS-2345

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Online Support Groups:
Malecare offers specialized support groups for men under 40 and gay men. Find general online cancer and prostate cancer support groups at CancerCare Connect. For traditional prostate cancer support groups in NC click here.

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Basic Information
Patient Advocates:

• UsToo! International
• The ProstateNet
• PSA Rising
• Phoenix 5
• MaleCare

• National Cancer Institute (NCI)
• American Cancer Society (ACS)
  

• Health Finder
• People Living With Cancer

• PROSTATEinfo.com (AstraZeneca)
• PROSTATEcare (GSK)

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Comprehensive Resource
ProstatePointers
Brady Urological Institute
PubMed, a service of the National Library of Medicine
National Library of Medicine database
MD Anderson

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Difficult Cases
Prostate Cancer Research Institute
Prostate Cancer Research and Education Foundation (PCREF)
Patient Advocates for Advanced Cancer Treatments
Hormone Refractory Prostate Cancer

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Definitions, Acronyms, and Glossaries
Prostate Pointer's Glossary of PCa Related Terms
Prostate Pointer's Prostate Cancer Digest
Prostate Cancer Research Institute Acronyms and Abbreviations
Prostate Cancer Research Institute Glossary of Medical Terms

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SPECIAL POPULATIONS

En Español
Prostate Cancer Research Institute (PCRI)
Cáncer de la próstata: la guía en hipertexto
National Cancer Istitute
MaleCare
CancerCare
Pan American Health Organization

For Gay Men
MaleCare: A gay man's guide to prostate cancer

Multi-Lingual Information:
MaleCare: Italiano
MaleCare: עברית
MaleCare: Russian
MaleCare: Francais

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