NC Survivor Network
|Baseline@40 | Newly Diagnosed Navigation Support
Welcome to the Prostate Cancer Coalition of North Carolina (PCCNC)
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Prostate cancer is a major health issue in North Carolina. The death rate from prostate cancer in North Carolina is one of the highest in the nation; African-American men in North Carolina have one of the highest death rates from prostate cancer in the world. We welcome all interested and committed individuals to join us!
One of the most important resources a man newly diagnosed with prostate cancer can tap into is the LIVESTRONG Foundation navigation program . This is the premier program for providing customized and personalized decision support. Through the LIVESTRONG Foundation navigation program newly diagnosed men can gain access to a professional oncology nurse navigator who provides FREE training to become an expert patient or support person. The program provides support in a 1 on 1 unbiased format, and can help the newly diagnosed man fully understand his options and to begin to lay out his treatment plan. Please view the video below to learn more about how LIVESTRONG can help men with cancer.
2:18 minutes into the presentation, you can here the story of Leon Brown, a prostate cancer survivor testimonial with direct experience with a Livestrong navigator. His story is preceded by the testimonial of Eric Stout, a testicular cancer survivor testimonial that provides additional valuable information about some of the resources available through Livestrong.
To assure high quality personalized care, newly diagnosed men should learn about how doctors define disease and consider treatment options based on if their disease looks to be low risk, intermediate risk, or high risk. Information and decision support from primary care doctors, pathologists, radiologists, urologists, radiation oncologists, and medical oncologists are essential to high quality decision support. Click here for tools to support this process.
On November 05, 2011, James Mohler, MD, PI for the North Carolina-Louisiana Prostate Cancer Project (PCaP) presented to leaders from across North Carolina on many findings - providing clarity and guidance on several major state and national issues.
The program covers screening, treatment, and many other important issues related to health policy and care. Click here to download the program presentation slides.
Early detection is important for men with aggressive prostate cancer, and aggressive cancer can't be identified unless cancer is found. The only way to potentially find this aggressive cancer early is by screening (both PSA and DRE). However, prostate cancer is not always aggressive. To learn more about the tools doctors use to evaluate disease aggressiveness please visit the navigation support page of our website that is designed to help men with prostate cancer better understand their personal disease risk and appropriate options based on risk.
The following process is intended to provide a framework for supporting optimal quality and quantity of life related survival for every man with prostate cancer.
"I cannot encourage you strongly enough to get a DRE (Digital Rectal Exam) and a PSA (Prostate Specific Antigen) test EVERY YEAR."
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The PCCNC is a 501c3 non-profit. We welcome charitable donations.
Prostate Cancer Coalition of North Carolina (PCCNC)
5905 Shamrock Road
Research Triangle Park, NC 27713